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Kellys mouth cancer is back


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1 hour ago, BuffaloRush said:

 

This may be a dumb question but has Kelly disclosed any risk factors which may have contributed to him getting cancer?  Not sure if it was tobacco use like dipping or chewing.

 

Obviously you never know for sure with cancer  

Not that I’m aware of. I know HPV is know to be a risk factor for oral cancers as well, (maybe more esophageal), but I’m not sure if there’s a link with Jim’s.

 We’ve seen a lot of oral cancer diagnosis in people who have never used tobacco products. Especially younger women. 

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Dealing with cancer is something you learn how to do.  It's not just the medical issues, the treatment etc., it's the psychological stuff you have to learn to wrestle with - the "what ifs."  Because you don't know you'll be able to beat it, you have to ask some hard questions:  Am I ready to die if that is what happens?  How do I relate to my family through this?  Will I be able to deal with the pain if there is a lot of it.  I had a stage two lung tumor removed a year ago, followed by chemo.  When you have had the initial cancer treated, and there is no evidence of any left behind, you're in something of a state of limbo.  You can't ever be sure it's not coming back.  That's where I am now - hoping for the best.  I know virtually nothing about Kelly's cancer, but I imagine the next step is to assess whether any alternative treatments are available (something not classified as chemotherapy).  If there is, they might give that a shot.  You may have seen ads on TV for Opdivo and Keytruda.  Both are immunotherapy drugs that are used for lung cancer.  There may or may not be some immunotherapy drugs available for Kelly's particular type of cancer.  I'm in a clinical study now for a drug, but I'm in the control group (I don't get the drug).  Should my cancer come back, I could take that drug, or I might be a candidate for Opdivo.  I know I'm not a candidate for Keytruda (the genetic profile of my cancer disqualifies me).  You just have to hope something works.  Maybe it will just give you more time if it doesn't cure the cancer.  Maybe with more time a newer and better drug will be developed.   In the meantime life goes on.  I think Kelly's experience with his son Hunter, and now his cancer has made him a much wiser and better person.  I dwould love to see him beat it for good at some point, but if not, I think he is living life the right way,  I don't know if that was always the case. 

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2 hours ago, TigerJ said:

Dealing with cancer is something you learn how to do.  It's not just the medical issues, the treatment etc., it's the psychological stuff you have to learn to wrestle with - the "what ifs."  Because you don't know you'll be able to beat it, you have to ask some hard questions:  Am I ready to die if that is what happens?  How do I relate to my family through this?  Will I be able to deal with the pain if there is a lot of it.  I had a stage two lung tumor removed a year ago, followed by chemo.  When you have had the initial cancer treated, and there is no evidence of any left behind, you're in something of a state of limbo.  You can't ever be sure it's not coming back.  That's where I am now - hoping for the best.  I know virtually nothing about Kelly's cancer, but I imagine the next step is to assess whether any alternative treatments are available (something not classified as chemotherapy).  If there is, they might give that a shot.  You may have seen ads on TV for Opdivo and Keytruda.  Both are immunotherapy drugs that are used for lung cancer.  There may or may not be some immunotherapy drugs available for Kelly's particular type of cancer.  I'm in a clinical study now for a drug, but I'm in the control group (I don't get the drug).  Should my cancer come back, I could take that drug, or I might be a candidate for Opdivo.  I know I'm not a candidate for Keytruda (the genetic profile of my cancer disqualifies me).  You just have to hope something works.  Maybe it will just give you more time if it doesn't cure the cancer.  Maybe with more time a newer and better drug will be developed.   In the meantime life goes on.  I think Kelly's experience with his son Hunter, and now his cancer has made him a much wiser and better person.  I dwould love to see him beat it for good at some point, but if not, I think he is living life the right way,  I don't know if that was always the case. 

 

Best of luck to you for ongoing good health and thanks for your perspective.

 

Best to JK on putting this in the rear view mirror once again. 

Edited by keepthefaith
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10 hours ago, TigerJ said:

Dealing with cancer is something you learn how to do.  It's not just the medical issues, the treatment etc., it's the psychological stuff you have to learn to wrestle with - the "what ifs."  Because you don't know you'll be able to beat it, you have to ask some hard questions:  Am I ready to die if that is what happens?  How do I relate to my family through this?  Will I be able to deal with the pain if there is a lot of it.  I had a stage two lung tumor removed a year ago, followed by chemo.  When you have had the initial cancer treated, and there is no evidence of any left behind, you're in something of a state of limbo.  You can't ever be sure it's not coming back.  That's where I am now - hoping for the best.  I know virtually nothing about Kelly's cancer, but I imagine the next step is to assess whether any alternative treatments are available (something not classified as chemotherapy).  If there is, they might give that a shot.  You may have seen ads on TV for Opdivo and Keytruda.  Both are immunotherapy drugs that are used for lung cancer.  There may or may not be some immunotherapy drugs available for Kelly's particular type of cancer.  I'm in a clinical study now for a drug, but I'm in the control group (I don't get the drug).  Should my cancer come back, I could take that drug, or I might be a candidate for Opdivo.  I know I'm not a candidate for Keytruda (the genetic profile of my cancer disqualifies me).  You just have to hope something works.  Maybe it will just give you more time if it doesn't cure the cancer.  Maybe with more time a newer and better drug will be developed.   In the meantime life goes on.  I think Kelly's experience with his son Hunter, and now his cancer has made him a much wiser and better person.  I dwould love to see him beat it for good at some point, but if not, I think he is living life the right way,  I don't know if that was always the case. 

Tiger J, Thanks for sharing and I wish you the best. I hope, God willing, you and Jim stay around for a long long time.

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32 minutes ago, Mr. WEO said:

Hate to say it but his love for Buffalo may have impacted his treatment course.  He may have been better off at Mayo or MD Anderson, or even Cleveland Clinic or Memorial.

 

That’s quite a thing to say especially when his treatment was at Sloan Kettering in New York City.

 

These things, unfortunately, happen.

 

 

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22 hours ago, nedboy7 said:

 

Cancer treatment in the us is dictated by the medical indaustial complex.  Its all BS. 

In June, it will be 5 years since Kelly went public with his initial cancer diagnosis. The fight is certainly not over, but remember that: 5 years and counting.  "Alternative" treatments would have almost certainly deprived all of us (and particularly Kelly's family) of 5 tremendous years that have been productive, inspirational, and a blessing. Please remember that before criticizing "big medicine."

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1 hour ago, Binghamton Beast said:

 

That’s quite a thing to say especially when his treatment was at Sloan Kettering in New York City.

 

These things, unfortunately, happen.

 

 

 

His first surgery was at ECMC.  His recurrence was treated at Memorial.

 

He didn't get radiation after the first surgery.  85% of the patients with his pathology do.  His cancer recurred within 9 months of his first surgery.

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38 minutes ago, Mr. WEO said:

 

His first surgery was at ECMC.  His recurrence was treated at Memorial.

 

He didn't get radiation after the first surgery.  85% of the patients with his pathology do.  His cancer recurred within 9 months of his first surgery.

 

 

Could he have elected not to do the radiation? Sounds like you’re making a pretty big assumption...

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3 minutes ago, billsfanmiami(oh) said:

 

 

Could he have elected not to do the radiation? Sounds like you’re making a pretty big assumption...

 

I suppose anything is possible.  But I don't know why a patient would agree to the surgical portion and not the adjuvant radiation if it was recommended.

 

My assumption is that Jim was told radiation would not be necessary.

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My wish for Jim is that he lives long enough to see his grandkids grow up to be as tough as he is.  No one punches harder than Jim in these kinds of fights. 

 

He brought us fans so many joyous moments that far outweighed any heartache.  Sending every prayer I can to hope for another winning battle.

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26 minutes ago, Mr. WEO said:

 

I suppose anything is possible.  But I don't know why a patient would agree to the surgical portion and not the adjuvant radiation if it was recommended.

 

My assumption is that Jim was told radiation would not be necessary.

 

 

Maybe because radiation sucks? You know what they say about assumptions...

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On 3/1/2018 at 9:13 AM, MiltonWaddams said:

Get yourself a tin hat and exit the thread to return to your life under a bridge.

 

Try learnign how they treat cancer in other countries. You might get a new perspective. 

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1 hour ago, billsfanmiami(oh) said:

 

 

Maybe because radiation sucks? You know what they say about assumptions...

 

 

Radiation does suck.  But it's not gratuitous.  I don't see any circumstance where Jim Kelly would, if offered as the standard treatment of surgery followed by radiation, refuse the radiation part.

 

He's going to say "do whatever it takes, I want this gone".  He is not going to say "radiation sounds rough.   Just do the operation and I will take my chances with recurrence".

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Jim really his special on NFL network about how he didn't always live the best lifestyle and really struggled with some of the decisions he made in the past and he felt that everything from Hunter to his cancer is paying for his sins of the past and now he's made peace with it and loves his wife and family. It's amazing that he admits to the wrongs of his past and wants to move forward. Get well Jimbo we need you around to cheer Buffalo back into the playoffs!

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On 3/1/2018 at 8:11 AM, nedboy7 said:

 

Cancer treatment in the us is dictated by the medical indaustial complex.  Its all BS. 

When you say its ALL BS I lose you there. Does what you say have some merit? Yes.

But I am more of the opinion that the medical industrial complex is 50% great and 50% dicey.

I've seen lives saved with treatment and I have seen MUCH needless treatment that only ruins

the quality of life more for the patient while providing false hope.

Unless a treatment protocol has a high % cure rate I would forego the chemo or other super aggressive treatments.

A few close friends suffered horribly chasing after a low % cure...and made the last couple years of their lives miserable

with the chemo and radiation.

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31 minutes ago, Tcali said:

When you say its ALL BS I lose you there. Does what you say have some merit? Yes.

But I am more of the opinion that the medical industrial complex is 50% great and 50% dicey.

I've seen lives saved with treatment and I have seen MUCH needless treatment that only ruins

the quality of life more for the patient while providing false hope.

Unless a treatment protocol has a high % cure rate I would forego the chemo or other super aggressive treatments.

A few close friends suffered horribly chasing after a low % cure...and made the last couple years of their lives miserable

with the chemo and radiation.

 

You are correct. My comment was made in anger at a system that I believe does not operate in the best interest of the patient. It operates based on profit like most things in this country. No disrespect to JK.  Or to anyone else here. I’ve seen what alternative treatments provide compared to chemo. 

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54 minutes ago, nedboy7 said:

 

You are correct. My comment was made in anger at a system that I believe does not operate in the best interest of the patient. It operates based on profit like most things in this country. No disrespect to JK.  Or to anyone else here. I’ve seen what alternative treatments provide compared to chemo. 

 

My dad just beat cancer a few months ago.  Went through radiation but not chemo.

One of my friends lost a parent because they went the alternative route instead of western medicine.   He regretted it on his death bed because the cancer was very treatable according to his doctor.

 

Steve Jobs also regretted taking the natural/homeopathic route. 

 

According to Steve Jobs’ biographer, Walter Isaacson, the AppleAAPL +0.16% mastermind eventually came to regret the decision he had made years earlier to reject potentially life-saving surgery in favor of alternative treatments like acupuncture, dietary supplements and juices. Though he ultimately embraced the surgery and sought out cutting-edge experimental methods, they were not enough to save him.

 

https://www.forbes.com/sites/alicegwalton/2011/10/24/steve-jobs-cancer-treatment-regrets/#3c0bc17a7d2e

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Cancer Sucks...

1 hour ago, Royale with Cheese said:

 

My dad just beat cancer a few months ago.  Went through radiation but not chemo.

One of my friends lost a parent because they went the alternative route instead of western medicine.   He regretted it on his death bed because the cancer was very treatable according to his doctor.

 

Steve Jobs also regretted taking the natural/homeopathic route. 

 

According to Steve Jobs’ biographer, Walter Isaacson, the AppleAAPL +0.16% mastermind eventually came to regret the decision he had made years earlier to reject potentially life-saving surgery in favor of alternative treatments like acupuncture, dietary supplements and juices. Though he ultimately embraced the surgery and sought out cutting-edge experimental methods, they were not enough to save him.

 

https://www.forbes.com/sites/alicegwalton/2011/10/24/steve-jobs-cancer-treatment-regrets/#3c0bc17a7d2e

 

My view is throw every effing thing you can at it. Conventional, homeopathic experimental...  etc.

 

jobs had pancreatic cancer, even though it wasn’t the absolute worst variant of it. Not too many beat that one no matter what they try 

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5 minutes ago, Over 29 years of fanhood said:

Cancer Sucks...

 

My view is throw every effing thing you can at it. Conventional, homeopathic experimental...  etc.

 

jobs had pancreatic cancer, even though it wasn’t the absolute worst variant of it. Not too many beat that one no matter what they try 

 

I'm all for that as well...anything and everything.

 

However my dad was getting "sold" by a homeopathic doctor.  She told him never to go through western medicine because she nearly has a 100% success rate.

She wanted $10,000 dollars from my dad up front to begin her treatment.  

I made my dad promise me he would listen to his regular doctors first, he was scared, easily influenced and vulnerable.  He did listen to his regular doctor and 13 sessions of radiation, his cancer was beat.

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1 hour ago, Royale with Cheese said:

 

My dad just beat cancer a few months ago.  Went through radiation but not chemo.

One of my friends lost a parent because they went the alternative route instead of western medicine.   He regretted it on his death bed because the cancer was very treatable according to his doctor.

 

Steve Jobs also regretted taking the natural/homeopathic route. 

 

According to Steve Jobs’ biographer, Walter Isaacson, the AppleAAPL +0.16% mastermind eventually came to regret the decision he had made years earlier to reject potentially life-saving surgery in favor of alternative treatments like acupuncture, dietary supplements and juices. Though he ultimately embraced the surgery and sought out cutting-edge experimental methods, they were not enough to save him.

 

https://www.forbes.com/sites/alicegwalton/2011/10/24/steve-jobs-cancer-treatment-regrets/#3c0bc17a7d2e

that's one person and a big maybe. there are others with completely opposite stories.

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5 minutes ago, Royale with Cheese said:

 

I'm all for that as well...anything and everything.

 

However my dad was getting "sold" by a homeopathic doctor.  She told him never to go through western medicine because she nearly has a 100% success rate.

She wanted $10,000 dollars from my dad up front to begin her treatment.  

I made my dad promise me he would listen to his regular doctors first, he was scared, easily influenced and vulnerable.  He did listen to his regular doctor and 13 sessions of radiation, his cancer was beat.

 

Congrats man. Very happy to hear about the wins. 

 

My pops wasn’t as lucky and I feel like there were some specific turning points where the standard protocols failed him. 

 

I cant emphasize enough to everyone to do all the proactive screening. 

 

Cant catch everything but sure can prevent a number of them now. 

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10 minutes ago, Over 29 years of fanhood said:

 

Congrats man. Very happy to hear about the wins. 

 

My pops wasn’t as lucky and I feel like there were some specific turning points where the standard protocols failed him. 

 

I cant emphasize enough to everyone to do all the proactive screening. 

 

Cant catch everything but sure can prevent a number of them now. 

 

Yeah my dad has to have check ups every 6 months for the first 2 years.

After than, it's annual check ups.

 

Sorry to hear about your dad.  My dad went through Cancer Treatment Centers of America.  There's only 4 locations and luckily, one was in Atlanta where we live.

They are supposedly the best and they worked for my dad.

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Just now, Royale with Cheese said:

 

Yeah my dad has to have check ups every 6 months for the first 2 years.

After than, it's annual check ups.

 

Sorry to hear about your dad.  My dad went through Cancer Treatment Centers of America.  There's only 4 locations and luckily, one was in Atlanta where we live.

They are supposedly the best and they worked for my dad.

 

Ive heard about them.  Seems like they hit it from every angle from diet to wellness to all the latest conventions. If I was kelly that’s where I’d be looking too

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