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Wacka update- Probably going home Tuesday!


Wacka

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34 minutes ago, Wacka said:

😀😀😀😀

it's at times like these  this,  when your online chat amigos show up and show OUT for you Wacka. Receive all those best wishes and prayers and get back to being out of the hospital and stuff. Healing and strength AMEN

 

God knows what you need, more than capable hands 🙂

 

In HIS speed and grace. So Great to read you today. 

 

healing FTW 🙂

 

🎊

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1 hour ago, Wacka said:

Out of icu since Wednesday night. Will give a betterUpdate later today. Brother is bringing my Lapttopk today. 


This is ***** awesome news! 

 

In even better news, I think you’re the early favorite for comeback poster of the year. 😊

 

 Keep the updates coming as much as you can. 

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Got my  laptop now. Using a phone to navigate web boards  is crap.

Thank you everyone for the prayers and well wishes..

 

Got put on the waiting list mid Jan. They say  the average wait time is 2-5 years. Get a call at noon on Valentines day. We get there at 2 PM. Hospital says the operation should be at 8 PM. 8 Comes and goes tell me it will be  at 7:30 AM. Tell me the donor was a 40 year old and by the delay it must have been from out of town.  Go down then  and get put under. Sister told me  ii was done around 10. Don't remember anything  before 4. Have an incision from near my navel  over to the right where they put the kidney in. 

 

Had a foley catheter. That was taken out Thursday. Strange sensation but didn't  hurt. Said the next morning the kidney was producing urine. Sometime it has to be "jump-started.  Had 3  dialyses and 1 long one. That 5 hr one drew 3L of waste. Wednesday night they moved me to the  burn unit because they needed the space in the ICU. and then Friday night up to the renal floor. Can walk to the bathroom, with help of course.

 

My oxygen level was low. put me on a Bi PAP machine for 24 hrs. Pure torture.  Nose and lips total dried out and had swollen nose from  the mask.Hen they put me pn a noisy  high flow cannula and know on a regular cannula. Mighttake me off of it tonight.

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On 2/22/2024 at 8:35 AM, Wacka said:

Came to at 4.transferred me last night to burn unit since they needed the   Room. 
 

 

 

Looking through the thread, the burn unit is appropriate.  I have seen some of your answers to people's posts here on TBD-TSW. 😁

*
I had a bout of pneumonia and sepsis in late June that put me into dialysis ever since, but at least in December I went from M-W-F down to M-F.  What has been somewhat surprising to medical staff has been the fact I continue to produce urine in good quantities.  I hope for you continued healing and recovery.

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12 hours ago, Wacka said:

Got my  laptop now. Using a phone to navigate web boards  is crap.

Thank you everyone for the prayers and well wishes..

 

Got put on the waiting list mid Jan. They say  the average wait time is 2-5 years. Get a call at noon on Valentines day. We get there at 2 PM. Hospital says the operation should be at 8 PM. 8 Comes and goes tell me it will be  at 7:30 AM. Tell me the donor was a 40 year old and by the delay it must have been from out of town.  Go down then  and get put under. Sister told me  ii was done around 10. Don't remember anything  before 4. Have an incision from near my navel  over to the right where they put the kidney in. 

 

Had a foley catheter. That was taken out Thursday. Strange sensation but didn't  hurt. Said the next morning the kidney was producing urine. Sometime it has to be "jump-started.  Had 3  dialyses and 1 long one. That 5 hr one drew 3L of waste. Wednesday night they moved me to the  burn unit because they needed the space in the ICU. and then Friday night up to the renal floor. Can walk to the bathroom, with help of course.

 

My oxygen level was low. put me on a Bi PAP machine for 24 hrs. Pure torture.  Nose and lips total dried out and had swollen nose from  the mask.Hen they put me pn a noisy  high flow cannula and know on a regular cannula. Mighttake me off of it tonight.

Hang in there brother. You're going to make it!

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  • 3 weeks later...
5 hours ago, Wacka said:

Should be going home Tuesday!

Have the 'Salt Police' patrolled your home, ridding you of the demon seasoning? 😈  My daughter-in-law (the RN) did a full house purge of all things that weren't good for my kidneys before I came home.  Farewell, cheese popcorn. 😪

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  • Wacka changed the title to Wacka update- Probably going home Tuesday!

All  vitals in normal range. Creatinine level (kidney health) headed down  (right direction).  Had a week of PT. Staples (35) should come out Monday. Incision was 10 inches measured on my skin surface.

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Got home Tuesday afternoon. 5 weeks. A week in ICU, two week on the renal floor at ECMC (Erie County Medical Center) whee the transplant center is.  10 days at the rehab center/ nursing home attached to ECMC. Did 6 days of PT there to start building up my stamina and strength. Staples  (35) and central line  came out Tuesday.   Have to record my BP, fluid input and output,  O2 level , weight and  pulse rate myself.  

Have ton go to renal floor weekly for a while  so they can monitor my med levels.

 

To answer some questions, they keep the original kidneys  as long as they are not cancerous or  actually deteriorating. The dialysis doesn't hurt at all. If you are active it is a BIG inconvenience. You have to remain in one place for 3 hours, but can  eat or take a nap or watch TV for 3 hours. After the transplant, I had to ave dialysis 6 times, 3 in the ICU and 3 times on the  renal floor. The "new "kidney has to "wake up" and it did after 2  weeks. Started peeing like recehorse after that. I'm 67 Monday and the kidney was from a 40 year old from out of town. The age of the donor is all I know. It was from out of town because I was supposed to have the transplant at 8 PM but when that rolled around, they told me it would be the next morning.  It happened at 7:30 AM.

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46 minutes ago, Wacka said:

Got home Tuesday afternoon. 5 weeks. A week in ICU, two week on the renal floor at ECMC (Erie County Medical Center) whee the transplant center is.  10 days at the rehab center/ nursing home attached to ECMC. Did 6 days of PT there to start building up my stamina and strength. Staples  (35) and central line  came out Tuesday.   Have to record my BP, fluid input and output,  O2 level , weight and  pulse rate myself.  

Have ton go to renal floor weekly for a while  so they can monitor my med levels.

 

To answer some questions, they keep the original kidneys  as long as they are not cancerous or  actually deteriorating. The dialysis doesn't hurt at all. If you are active it is a BIG inconvenience. You have to remain in one place for 3 hours, but can  eat or take a nap or watch TV for 3 hours. After the transplant, I had to ave dialysis 6 times, 3 in the ICU and 3 times on the  renal floor. The "new "kidney has to "wake up" and it did after 2  weeks. Started peeing like recehorse after that. I'm 67 Monday and the kidney was from a 40 year old from out of town. The age of the donor is all I know. It was from out of town because I was supposed to have the transplant at 8 PM but when that rolled around, they told me it would be the next morning.  It happened at 7:30 AM.

the technology to do transplants at all  is amazing to me.  I know a guy who had a heart transplant. His name is Brad Ellis a well respected musician who was the accompanist for the TV show Glee. He is doing great now. It sounds as if you are well on your way to recovery too. Keep it going!

 

It's a great message . Be a organ donor it saves lives in the unfortunate circumstances you are in that position.

 

Quote

Ellis has also waged a very personal crusade to raise awareness for organ donation. Fourteen years ago, he received a heart transplant after going into congestive heart failure due to a childhood virus. He uses his Hollywood clout to get the message out.

 

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3 hours ago, Wacka said:

Got home Tuesday afternoon. 5 weeks. A week in ICU, two week on the renal floor at ECMC (Erie County Medical Center) whee the transplant center is.  10 days at the rehab center/ nursing home attached to ECMC. Did 6 days of PT there to start building up my stamina and strength. Staples  (35) and central line  came out Tuesday.   Have to record my BP, fluid input and output,  O2 level , weight and  pulse rate myself.  

Have ton go to renal floor weekly for a while  so they can monitor my med levels.

 

To answer some questions, they keep the original kidneys  as long as they are not cancerous or  actually deteriorating. The dialysis doesn't hurt at all. If you are active it is a BIG inconvenience. You have to remain in one place for 3 hours, but can  eat or take a nap or watch TV for 3 hours. After the transplant, I had to ave dialysis 6 times, 3 in the ICU and 3 times on the  renal floor. The "new "kidney has to "wake up" and it did after 2  weeks. Started peeing like recehorse after that. I'm 67 Monday and the kidney was from a 40 year old from out of town. The age of the donor is all I know. It was from out of town because I was supposed to have the transplant at 8 PM but when that rolled around, they told me it would be the next morning.  It happened at 7:30 AM.

Best wishes for continued progress 🎉🎈🎊🏈

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9 hours ago, muppy said:

the technology to do transplants at all  is amazing to me.  I know a guy who had a heart transplant. His name is Brad Ellis a well respected musician who was the accompanist for the TV show Glee. He is doing great now. It sounds as if you are well on your way to recovery too. Keep it going!

 

It's a great message . Be a organ donor it saves lives in the unfortunate circumstances you are in that position.

 

 

He might have met someone I met through my hobby.  But maybe not the way they record nowadays.  Her name is Elin Carleson. She sang some of the scat that led in and out of the commercials on Glee.  She is a professional opera singer and was in a Malcom in the Middle episode where Dewey wrote an opera. She did the opera part in Mr. Blue Sky for a BMW commercial  and most famously is the ah aaaaaa on the remastered ST:TOS DVDs.

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Great news.  And just yesterday surgeons in Boston transplanted a gene-edited pig kidney into a living human (they did one last year in a brain dead person).  

 

 

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3 hours ago, Wacka said:

He might have met someone I met through my hobby.  But maybe not the way they record nowadays.  Her name is Elin Carleson. She sang some of the scat that led in and out of the commercials on Glee.  She is a professional opera singer and was in a Malcom in the Middle episode where Dewey wrote an opera. She did the opera part in Mr. Blue Sky for a BMW commercial  and most famously is the ah aaaaaa on the remastered ST:TOS DVDs.

Brad  Ellis was the musical director as well as the pianist accompanist on the show Glee so he definitely knew your acquaintance. He is an interesting guy to hear speak in person.   He was my daughters accompanist for a show in Hollywood and she has worked with him 3 times. My daughter is a classically trained vocalist who went to school at Boston Conservatory. He went to Berklee also in Boston.  Those 2 schools are now under one musical umbrella . anyway they are both Professionals and worked together as such.

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  • 4 weeks later...
Posted (edited)

Went to ECMC for blood/urine lab tests today. Been home a month as of Friday. Driving again and drove myself there today. No call from the transplant center so it looks like tests are all good. Want up to the center  as I was there to get my med prescriptions transferred to my pharmacy. Having experienced the joy of getting  a transplant two months ago, I got to see the despair of not getting one  first hand.  While I was waiting, the nurse came out to tell the other person in the waiting area that the kidney they  had for her was  not suitable for transplant  when they saw it in person. The nurse had tried to call her but they were already on their way. They do warn you that that could happen,  but seeing it happen in front of you affects you.

Edited by Wacka
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