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rockpile

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About rockpile

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    Waiting until next year since 1967!

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    Rochester, NY

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  1. After midnight, we're gonna let it all hang out.
  2. We went up for the weekend to CT, and spent a lot of time with "Cheeky" at the Smilow Cancer Hospital in New Haven. He has become more responsive and interactive, but his condition still varies day to day. We spent as much time with him and his sister, "Deanie" to try to give my daughter and son-in-law a bit of a break. When he first saw me in my Avengers t-shirt, he perked up and started pointing at the heroes, especially the Hulk. He is eating a little but still is wired and tubed up. We were able to have him placed in a wagon and we walked through the open air wellness garden. There is little we can do from six hours away, but we do what we can. After Dad took over at the hospital, we got to spend some time with my daughter, had our granddaughter do a sleepover at the hotel, took her to an egg hunt, and went to church on Palm Sunday. We keep praying and are thankful he is out of intensive care. It was pretty scary a few weeks ago.
  3. Update: After a few weeks under sedation, "Cheeky" is slowly waking up. He is out of PICU and just starting to eat a little (apple sauce and yogurt - soft foods) Once he can keep food down and his liver is healthy again I will feel better. He is talking a little, but is still pretty "out of it". It is a merry-go-round because it will take 6-8 weeks to make him strong again so they return to chemo to keep fighting the cancer. It is an odd thought that the goal is to make him well so they can poison him again. It is the only way to kill all the cancer! Everyone is staying positive. Prayers are requested. You can follow his story on FB, by searching for "Team Naaman". God Bless! Rockpile
  4. Cheeky is still in PICU, but is no longer in critical condition. He cannot talk but he pantomimed he wanted his Captain America mask on. I now there are ups and downs, but I will still celebrate the good news. He will still have to stay in the hospital, perhaps for months. "Cheeky"
  5. We are going up to see him, but if he's still in Pediatric ICU (PICU), we won't actually "see" him. We are helping our daughter and son-in-law and spending time with Cheeky's big sister. It is hard to help from six hours away! Everyone is projecting those positive vibes, and his PARENTS ARE MY HEROES for focusing on only good things. The power of prayer is underestimated.
  6. Sometimes the cure is worse than the disease. "Cheeky" has been under sedation for a couple weeks, fighting fighting ALL Leukemia with chemo cocktails, transfusions, and other various side effect maladies such as liver swelling, fluids filling his abdomen, kidneys barely working, and the "corona" virus. His doctors say "he has turned the corner", but of course that can change any time. We are thankful the downward swing is stopped for now. He is slowly being brought out of sedation, so know he is also fighting prescription drug withdrawal If you want, you can follow his story here: Cheeky's Battle or on FB at "Team Naaman". Please say a prayer for my grandson and his family.
  7. Might as well. In fact, make it four. I only saw this because it was on this thread (you were already being ignored). To those who do not know us, this is the way me and jack-less "communicate". I am thinking of filing for divorce if it gets better.
  8. I just did this with Hamilton, but still could not get a seat where I wanted to sit that I could afford.
  9. Thanks! There is no such thing as a small donation unless your name is Jack. We walk no matter what the weather is! The larger walk in the city of Rochester is on May 5, and to be honest it got so large it was no longer fun! The walk in Canandaigua is smaller but it all goes to the same cause.
  10. We are walking in Canandaigua on May 19th, 2019 again this year and are asking for your help. It seems impossible to believe that I was first diagnosed with relapsing remitting Multiple Sclerosis (R/R MS) 25 years ago! Thanks to improved care and therapy, most of that time I was in remission. Instead of giving myself daily shots or getting monthly IV infusions. I now just take one pill a day. I have some limitations, and had to go on disability a couple years ago, but I have few complaints! Total sponsors in 2018 contributed $1,365 to help those with MS and find a cure. Since about 2003, we have raised over $20,000 for the National MS Society in Rochester and Canandaigua. A substantial amount of the contributions were from Two Bills Drive Please sponsor me if you can. At least go to the link provided and read my story! MS WALK sponsors click here Thank you! Rock 👣
  11. Jay's friend might be your friend too. Nicole aka Babyrock is my daughter. Way back when she was still in college, she and another of my daughters and some of their friends were "ticket girls" for raffles at the TBDAHOT, if you have been with TBD long enough to remember! I met Matt Kabel at a tailgate in Buffalo (I believe) and saw him one year with Nicole at the NY City Bills Backers in Manhattan. Small world! Sadly, Sally's fight against Infant Mixed Lineage (MLL) ALL Leukemia is finished but not her disease. Your support and prayers are still appreciated. Naaman (Cheeky) is my grandson. He was diagnosed in July 2018 with PH-like ALL - Leukemia. He will turn two years old at the end of this month. Cheeky, will be undergoing intense and aggressive treatment for at least another 2 1/2 to 3 years. He is on FACEBOOK as "Team Naaman". Read Sweet Sally Sunshine's and Naaman's stories and the links Jay provided. Please help in any way that is best for you. God Bless. Rock Cheeky got an early birthday surprise from ONE Bills Drive and Billy Buffalo.
  12. I used to drive a freezer delivery van. It had a two speed axle and eight total gears. I rarely needed more than four gears.
  13. I can drive a manual transmission but in 1959 I was only six years old.
  14. I think only about 1% of men will make effective soldiers but there are a lot of non-military support roles each could manage well.
  15. According to Selective Services, " Virtually all male U.S. citizens, regardless of where they live, and male immigrants, whether documented or undocumented, residing in the United States, who are 18 through 25, are required to register with Selective Service." "Today, ALL conscientious objectors are still required to register with the Selective Service System. A conscientious objector is one who is opposed to serving in the armed forces and/or bearing arms on the grounds of moral or religious principles." Females do not have to register. If men and women are equal, why is this still the law? Your thoughts? BTW: I have two grandsons in the Army National guard. One is now also in college and the other finished his associates degree and is a new deputy in Ontario County.
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