Campy Posted June 15, 2005 Share Posted June 15, 2005 I'm not going to lie. I had some reservations about posting this up here. I really don't mind other people's LAMPs, but I'm not sure I'm crazy about them being about me. But since there were so many of you who asked for updates and wanted to keep up with my situation, it judt wouldn't be practical to try and PM all of you, so here goes... The final lab results are in from the "mystery tissue" growing around my eyes (in the conjunctiva for you medical types). I do have cancer. It's B-Cell Non-Hodgkins Lymphoma, more specifically, a MALT or MALToma. What that means is that it "likes" mucous, so it tends to be in areas like the eyes (like me), the mouth, the throat, the stomach (like Joe Fergy), the intestines, etc. Right now there is no evidence that it has spread to my eyes from elsewhere which is a good sign, but the oncologist will be able to better determine if that is the case. If it spread from somewhere else (eg, throat or stomach) to my eyes that could be bad news. Very bad news. It's possible that it did do just that but in others who had a similar situation, statistically speaking the odds are better it that it did not spread from elsewhere, so I'm maintaining a positive attitude and hoping for the best. If it did spread to my eyes from elsewhere, I can look forward to surgery and chemo. Again, if the stats can be believed, I, most likely, will not have chemo. What they plan on doing is narrow beam radiation to my eyes. While the reactions to narrow beam radiation aren't as severe as those of chemo, it won't be very much fun. The most lasting side-effect (possible sterility aside) is glaucoma. Since my ophthalmologist is involved through this entire process, the glaucoma will be caught early enough so that I have chance it can be corrected with surgery and then eye drops daily. And my poor wife. Despite the facade she exhibits to friends, I think she's been more worried and anxious than me. Obvious big-picture health concerns aside, I told her that my main priority is feel to healthy enough to make the trip up on Sept 11. She just rolled her eyes and sighed. ...I guess some people just don't get Bills football! Link to comment Share on other sites More sharing options...
BF_in_Indiana Posted June 15, 2005 Share Posted June 15, 2005 I hope you feel well Chris and that you are there for the opener. Wouldn't be the same without you. Link to comment Share on other sites More sharing options...
Beerball Posted June 15, 2005 Share Posted June 15, 2005 Hang tough Campy. Thoughts and prayers continue to flow your way. Link to comment Share on other sites More sharing options...
JÂy RÛßeÒ Posted June 15, 2005 Share Posted June 15, 2005 Thanks for the update, Chris. Here's hoping you follow the stats! Link to comment Share on other sites More sharing options...
duey Posted June 15, 2005 Share Posted June 15, 2005 Dude...hang in there and be strong. The Stadium Wall family is behind you and praying like hell. Link to comment Share on other sites More sharing options...
NCDAWG Posted June 15, 2005 Share Posted June 15, 2005 I'm sorry. Hope it goes well for you. God bless and don't take crap from any nurse ratchet types. Link to comment Share on other sites More sharing options...
Guffalo Posted June 15, 2005 Share Posted June 15, 2005 We are all behind you Camp, follow the doc's orders and keep the faith! We are all praying for you! Link to comment Share on other sites More sharing options...
aussiew Posted June 15, 2005 Share Posted June 15, 2005 Group prayer always works Chris. Thanks for the update. We're all pulling for you. Link to comment Share on other sites More sharing options...
MadBuffaloDisease Posted June 15, 2005 Share Posted June 15, 2005 We're behind you. Link to comment Share on other sites More sharing options...
jocap55 Posted June 15, 2005 Share Posted June 15, 2005 wishing you a rapid and full recovery Link to comment Share on other sites More sharing options...
TheMadCap Posted June 15, 2005 Share Posted June 15, 2005 Best wishes to you Camp. I know you will overcome. I plan on seeing you at the opener... Link to comment Share on other sites More sharing options...
Dan Gross Posted June 15, 2005 Share Posted June 15, 2005 Continued prayers and best wishes Chris. Thanks for the update. Link to comment Share on other sites More sharing options...
Terry Tate Posted June 15, 2005 Share Posted June 15, 2005 It's B-Cell, which means it originates from bone marrow. It's Non-Hodgkins Lymphoma, more specifically, a MALT or MALToma. Very encouraging reading on cancer.org on this: Extranodal marginal zone B-cell lymphomas - mucosa-associated lymphoid tissue (MALT) lymphomas: ... Usually it is confined to the area where it began and is not widespread ... It is a slow growing lymphoma and is often curable in its early stages. You have good reason to be optimistic about this. Keep your spirits up, and best of luck to you. Link to comment Share on other sites More sharing options...
sweet baboo Posted June 15, 2005 Share Posted June 15, 2005 Best wishes to you Link to comment Share on other sites More sharing options...
Nanker Posted June 15, 2005 Share Posted June 15, 2005 Campy yer bumming me out. I'm feeling for you big time. You and I have been at opposite sides of various positions here and there. But I'm willing to take a big hit for you on this one. Let's make a deal. You get better and I'll gladly forget I never liked Bledsoe! Link to comment Share on other sites More sharing options...
Pete Posted June 15, 2005 Share Posted June 15, 2005 We are all pulling for you Campy. You are in my thoughts and prayers. Kick its ass! Stay tough and positive. Go Campy! Link to comment Share on other sites More sharing options...
ExiledInIllinois Posted June 15, 2005 Share Posted June 15, 2005 May my best wishes and prayers be with you. My mother would say: "Life by the yard is hard, by the inch a cinch." Take it one day at a time and GET WELL! Link to comment Share on other sites More sharing options...
BILLS4LIFE Posted June 15, 2005 Share Posted June 15, 2005 Thanks for the update Camp and hang in there! Thinking of you always and hope to see you at the Opener. Link to comment Share on other sites More sharing options...
LewPort71 Posted June 15, 2005 Share Posted June 15, 2005 Prayers and thoughts for a speedy recovery !! Link to comment Share on other sites More sharing options...
envirojeff Posted June 15, 2005 Share Posted June 15, 2005 I'm not going to lie. I had some reservations about posting this up here. I really don't mind other people's LAMPs, but I'm not sure I'm crazy about them being about me. But since there were so many of you who asked for updates and wanted to keep up with my situation, it judt wouldn't be practical to try and PM all of you, so here goes... The final lab results are in from the "mystery tissue" growing around my eyes (in the conjunctiva for you medical types). I do have cancer. It's B-Cell, which means it originates from bone marrow. It's Non-Hodgkins Lymphoma, more specifically, a MALT or MALToma. What that means is that it "likes" mucous, so it tends to be in areas like the eyes (like me), the mouth, the throat, the stomach (like Joe Fergy), the intestines, etc. Right now there is no evidence that it has spread to my eyes from elsewhere which is a good sign, but the oncologist will be able to better determine if that is the case. If it spread from somewhere else (eg, throat or stomach) to my eyes that could be bad news. Very bad news. It's possible that it did do just that but in others who had a similar situation, statistically speaking the odds are better it that it did not spread from elsewhere, so I'm maintaining a positive attitude and hoping for the best. If it did spread to my eyes from elsewhere, I can look forward to surgery and chemo. Again, if the stats can be believed, I, most likely, will not have chemo. What they plan on doing is narrow beam radiation to my eyes. While the reactions to narrow beam radiation aren't as severe as those of chemo, it won't be very much fun. The most lasting side-effect (possible sterility aside) is glaucoma. Since my ophthalmologist is involved through this entire process, the glaucoma will be caught early enough so that I have chance it can be corrected with surgery and then eye drops daily. And my poor wife. Despite the facade she exhibits to friends, I think she's been more worried and anxious than me. Obvious big-picture health concerns aside, I told her that my main priority is feel to healthy enough to make the trip up on Sept 11. She just rolled her eyes and sighed. ...I guess some people just don't get Bills football! 358802[/snapback] Campy, my best friend sells cancer drugs to Roswell Park and knows many doctors. His company has doctors doing studies with a number of drugs also. One was profiled on a local Buffalo news station http://www.wivb.com/global/category.asp?c=2745. My friend was directly involved with this doctor on this study. I'm sure he could help you out or get you in contact with the right people. Please PM me if you want further info. Jeff Link to comment Share on other sites More sharing options...
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