rockpile Posted March 12, 2018 Share Posted March 12, 2018 (edited) We are walking again this year, but moving our site from Rochester on the Genessee River to Canandaigua Lake on May 20th. The walk will start at Sonnenberg Gardens. Donate at MS site: MS WALK 2018 - Help raise money to fight MS Donate on Facebook: Family Rocks! STILL ROCKING after all these years! It is time for my ANNUAL request for people to sponsor me when my team, Family Rocks! walk about 10K at the MS Walk in Canandaigua, NY. This year the walk is Sunday, May 20th. The walk starts at Sonnenberg Gardens Personal stuff: I was DIAGNOSED with relapsing-remitting Multiple Sclerosis in 1994. I know now that I had MS before then, because there were times when things were “not quite right”. I would tire easily, and walk with a slight limp. My vision would be blurry and I sometimes felt like I was seeing double if I did not concentrate on an image. The symptoms would come and go, and were not COMPLETELY stopping me from doing the things I wanted to do. But the official date I was tested for and a diagnosis confirmed for MS was June 1994. The nature of a relapsing-remitting disease is that it can “come and go”. This has become a real family event raising over $18,000 since 2003, thanks to the spirit of paying it forward by our many sponsors. No donation is too small (or too big!). The important thing is that whether you sponsor me or someone else in the fight against MS, Cancer, Lupus, The Red Cross and a myriad of worthy causes, do something. If you have no money, volunteer to help if you can. We all need to pull together and not wait for someone else to help us! We have been in both the Top 50 and Top 100 Club multiple times as a top contributor BASED ENTIRELY ON YOUR GENEROSITY. Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks The National Multiple Sclerosis Society has excellent ratings as far as the percent of donations received, how they are used, and the percentage of “overhead” for salaries and facilities. Here are a few examples: The National Health Council Standards of Excellence Certification Program reports: " The Society mobilizes people and resources to drive research for a cure and to address the challenges of everyone affected by MS. To fulfill this mission, the Society funds cutting-edge research, drives change through advocacy, facilitates professional education, collaborates with MS organizations around the world, and provides programs and services designed to help people with MS and their families move their lives forward. In 2014 alone, through our comprehensive nationwide network of programs and services, the Society devoted $122.2 million to assist more than one million individuals to connect to the people, information and resources they needed. To move us closer to a world free of MS, the Society also invested $50.2 million to support more than 380 new and ongoing research projects around the world. The Society is dedicated to achieving a world free of MS." Edited March 28, 2018 by rockpile typo fixed 1 Link to comment Share on other sites More sharing options...
Just Jack Posted March 12, 2018 Share Posted March 12, 2018 When’s the absolute last day to make a donation? I want to make sure I miss it again this year. Link to comment Share on other sites More sharing options...
rockpile Posted March 15, 2018 Author Share Posted March 15, 2018 On 3/12/2018 at 12:00 PM, Just Jack said: When’s the absolute last day to make a donation? I want to make sure I miss it again this year. The Canandaigua MS Walk is May 20, but donations that sponsor me continue through June. Donations to the National MS Society are always accepted. My goal is $1,000 and I have $75 to start things off. Link to comment Share on other sites More sharing options...
rockpile Posted March 15, 2018 Author Share Posted March 15, 2018 MS Walk Canandaigua - Current Status: Goal: $1,000 Current Total: $175 (18%) Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Scoundrels: Jack Link to comment Share on other sites More sharing options...
rockpile Posted March 22, 2018 Author Share Posted March 22, 2018 There are 59 days left until the MS Walk in Canandaigua! Current Status: Goal: $1,000 Current Total: $225 (23%) Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks THANK YOU! Link to comment Share on other sites More sharing options...
mead107 Posted March 28, 2018 Share Posted March 28, 2018 Need to pin this thread Link to comment Share on other sites More sharing options...
rockpile Posted March 28, 2018 Author Share Posted March 28, 2018 (edited) UPDATE: As of today we are up to $290. Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks Edited March 28, 2018 by rockpile brevity Link to comment Share on other sites More sharing options...
Just Jack Posted April 1, 2018 Share Posted April 1, 2018 Must be the mods don’t like you. This normally would have been pinned within a day of you posting it. Link to comment Share on other sites More sharing options...
rockpile Posted April 2, 2018 Author Share Posted April 2, 2018 I have been fighting my MS since 1994. I will keep bumping this until May 20th. For every dollar raised I am happy. Thanks! Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks Link to comment Share on other sites More sharing options...
rockpile Posted April 6, 2018 Author Share Posted April 6, 2018 On 4/2/2018 at 11:08 AM, rockpile said: I have been fighting my MS since 1994. I will keep bumping this until May 20th. For every dollar raised I am happy. Thanks! Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks Still at $290 for donations, which I thank my sponsors for! IF you are so inclined, please follow the link and donate to a good cause! Thanks, Rock Link to comment Share on other sites More sharing options...
section122 Posted April 6, 2018 Share Posted April 6, 2018 Keep fighting the good fight rockpile! This is a great MS organization to donate to. You made the top 5 so far for donations! Unfortunately my family can't do the walk this year so do you mind me sharing your link to them? Link to comment Share on other sites More sharing options...
rockpile Posted April 6, 2018 Author Share Posted April 6, 2018 4 hours ago, section122 said: Keep fighting the good fight rockpile! This is a great MS organization to donate to. You made the top 5 so far for donations! Unfortunately my family can't do the walk this year so do you mind me sharing your link to them? By all means, share the link with anyone you want. Donations are routed to the MS society. By the time the walk is done, I will need over $1,200 to make the Top 100 Club! I generally have friends, my wife, a couple of my grown children, and several GRANDCHILDREN walking with us. We have been dong it for about 15 years now. Link to comment Share on other sites More sharing options...
boyst Posted April 7, 2018 Share Posted April 7, 2018 done 1 Link to comment Share on other sites More sharing options...
rockpile Posted April 9, 2018 Author Share Posted April 9, 2018 Thanks for sponsoring me, Jeff! I really appreciate your support for the cause to Find A Cure for MS! BTW: Word is that R. Rich, Lisa and team walked May 7th and raised $500! Hats off to you, my twin Brother and Sister!! 1 Link to comment Share on other sites More sharing options...
boyst Posted April 10, 2018 Share Posted April 10, 2018 (edited) On 4/9/2018 at 11:22 AM, rockpile said: Thanks for sponsoring me, Jeff! I really appreciate your support for the cause to Find A Cure for MS! BTW: Word is that R. Rich, Lisa and team walked May 7th and raised $500! Hats off to you, my twin Brother and Sister!! Get that man a Stetson Edited April 11, 2018 by Boyst62 1 Link to comment Share on other sites More sharing options...
Just Jack Posted April 10, 2018 Share Posted April 10, 2018 15 hours ago, rockpile said: BTW: Word is that R. Rich, Lisa and team walked May 7th and raised $500! Hats off to you, my twin Brother and Sister!! That’s because people know he doesn’t stop to take pictures. (And he is very good at convincing people that it’s better to donate to him than to you ?) 1 Link to comment Share on other sites More sharing options...
rockpile Posted April 11, 2018 Author Share Posted April 11, 2018 On 4/10/2018 at 2:36 AM, Just Jack said: That’s because people know he doesn’t stop to take pictures. (And he is very good at convincing people that it’s better to donate to him than to you ?) A donation to the MS Society, in someone else's name is also a donation to MY cause. So just sneak out the back, Jack! Link to comment Share on other sites More sharing options...
rockpile Posted April 15, 2018 Author Share Posted April 15, 2018 UPDATE: As of today we have $390 from our sponsors. Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks When you get to the donation page, it has "suggested" amounts starting on the left at $35, but on the far right you can put in any amount. ANY amount is greatly appreciated and many $5 contributions add up to a LOT! Link to comment Share on other sites More sharing options...
rockpile Posted April 15, 2018 Author Share Posted April 15, 2018 This is a link to an interesting video and also an informative blog about MS. It goes in to available treatments, how it feels to have MS, how others see you or do not see your MS. It was part of the March MS Awareness program, but it is appropriate at any time. FYI: my most recent MRI's showed no progression in my MS lesions in my brain or spine, but now I have spinal stenosis in my neck (cervical spine). I can manage the occasional pain with Ibuprofen, so we will just keep monitoring it. I was diagnosed with MS when I was in my mid 40's and will be 65 this year, but I am still fighting. Many people have it worse than me, and I walk to help THEM! Janice Dean talks about her MS. 1 Link to comment Share on other sites More sharing options...
Just Jack Posted April 16, 2018 Share Posted April 16, 2018 Hey, how much longer do I have to ignore you? Link to comment Share on other sites More sharing options...
rockpile Posted April 16, 2018 Author Share Posted April 16, 2018 The Walk is May 20th, the will accept donations for the walk after that date. Link to comment Share on other sites More sharing options...
Mr Info Posted April 17, 2018 Share Posted April 17, 2018 (edited) Just made a donation to support your effort and hope a better treatment surfaces for you. I see that many small and large pharmaceutical companies have active programs for treatments and, hopefully, a cure. It is encouraging that many are in Phase III trials. Genentech's Ocrevus was just approved on March 28 for MS and PPMS. Perhaps that will be available for you. https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm549325.htm Edited April 17, 2018 by Mr Info Link to comment Share on other sites More sharing options...
mead107 Posted April 17, 2018 Share Posted April 17, 2018 On 4/16/2018 at 9:25 AM, rockpile said: The Walk is May 20th, the will accept donations for the walk after that date. I donated to Rrich 1 Link to comment Share on other sites More sharing options...
rockpile Posted April 18, 2018 Author Share Posted April 18, 2018 2 hours ago, mead107 said: I donated to Rrich Thank you! Link to comment Share on other sites More sharing options...
rockpile Posted April 18, 2018 Author Share Posted April 18, 2018 7 hours ago, Mr Info said: Just made a donation to support your effort and hope a better treatment surfaces for you. I see that many small and large pharmaceutical companies have active programs for treatments and, hopefully, a cure. It is encouraging that many are in Phase III trials. Genentech's Ocrevus was just approved on March 28 for MS and PPMS. Perhaps that will be available for you. https://www.fda.gov/newsevents/newsroom/pressannouncements/ucm549325.htm Thank you! I appreciate your support. I am taking Gilenya right now, which is a daily pill. I have been on treatments like Ocrevus, which is an infusion (bag and IV). What is encouraging is it seems to help those with the progressive form of MS that can really hit you hard. I have the relapsing/remitting MS that comes and goes. My medication is pretty effective in stopping or slowing down relapses. I am kind of a guinea pig, since when I was first diagnosed they were just starting to have treatments to slow down MS. My treatments have been self injection, infusion, and now oral. Luckily prescription assistance programs pay for my drug for now. Annual costs would range from $65,000 to $96,000, I would have to stop treatment if asked to pay for it. SSDI plus my wife's income is enough to live on within our comfort zone (no complaints) , but prescription costs are beyond reason! Link to comment Share on other sites More sharing options...
mead107 Posted April 18, 2018 Share Posted April 18, 2018 Glad this got pinned. Step up to the plate everyone. $ 10 from 500 members would do wonders. Link to comment Share on other sites More sharing options...
boyst Posted April 21, 2018 Share Posted April 21, 2018 On 4/18/2018 at 2:10 PM, mead107 said: Glad this got pinned. Step up to the plate everyone. $ 10 from 500 members would do wonders. 1 dollar from 5,000 members would be even better! Link to comment Share on other sites More sharing options...
rockpile Posted April 22, 2018 Author Share Posted April 22, 2018 UPDATE: As of today we have $515 from our sponsors. Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. NanLoan Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks When you get to the donation page, it has "suggested" amounts starting on the left at $35, but on the far right you can put in any amount. ANY amount is greatly appreciated and many $5 contributions add up to a LOT! Link to comment Share on other sites More sharing options...
Just Jack Posted May 5, 2018 Share Posted May 5, 2018 On 4/21/2018 at 10:32 AM, Boyst62 said: 1 dollar from 5,000 members would be even better! or 50 cents from 10,000 members. Link to comment Share on other sites More sharing options...
boyst Posted May 5, 2018 Share Posted May 5, 2018 2 minutes ago, Just Jack said: or 50 cents from 10,000 members. Or 100 fat chicks for $5 a piece. Link to comment Share on other sites More sharing options...
Just Jack Posted May 5, 2018 Share Posted May 5, 2018 Just now, Boyst62 said: Or 100 fat chicks for $5 a piece. Or 50 students paying $10 to get GDIB's secret "Teachers that have sex with students" list. Link to comment Share on other sites More sharing options...
rockpile Posted May 7, 2018 Author Share Posted May 7, 2018 30th Annual MS Walk in Rochester was today. Over 1,200 people walked in Genesee Valley Park and raised over $165,000. MS Walk in Rochester today! I will be walking on May 20th in Canandaigua for the same cause. UPDATE: As of today we have $615 from our sponsors. Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks Link to comment Share on other sites More sharing options...
rockpile Posted May 7, 2018 Author Share Posted May 7, 2018 Walk MS® brings together a community of passionate people to connect and raise funds to change the world for everyone affected by multiple sclerosis. Walk MS takes place at over 400 locations with more than 300,000 people participating annually. We've been walking since 1988 and to date have raised have raised more than $1 billion to drive groundbreaking research, provide life-changing services and guarantee a supportive community for those who need it most. When you participate in Walk MS, you are helping create a world free of multiple sclerosis. Together, we become a powerful force. Together, we will end MS forever. Link to comment Share on other sites More sharing options...
rockpile Posted May 10, 2018 Author Share Posted May 10, 2018 Wow! What a week! On Monday, sponsor total was $615. As of this morning, the total is $915. I am sure we can beat our $1,000 goal in the next ten days! I cannot adequately express both the gratitude and humility I have in response to your support! Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Grace G.G. Kevin B.W. (TSW?) K and J Morgant Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks $915.00 I Have Raised $1,000.00 My Goal (change) 10 Days Left Until Event Link to comment Share on other sites More sharing options...
rockpile Posted May 17, 2018 Author Share Posted May 17, 2018 (edited) FOUR Days Left! We beat our $1,000 goal today, but are still asking for you to sponsor us! Current Total: $1,065 ! I cannot adequately express both the gratitude and humility I have in response to your support! Thanks to all! Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Grace G.G. Don DeCarlo Kevin B. Wynne K and J Morgante R. Narad The Marrowbacks Scoundrels: Jack If you choose to participate: Donations (tax deductible in 2018) can be made at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks Edited May 17, 2018 by rockpile add sponsors and edit list Link to comment Share on other sites More sharing options...
MakeBuffaloGreatAgain Posted May 20, 2018 Share Posted May 20, 2018 Did this walk a few years in a row in Vegas in support of my Grandma... Good cause. Thoughts and prayers to everyone. Link to comment Share on other sites More sharing options...
rockpile Posted May 21, 2018 Author Share Posted May 21, 2018 (edited) 14 hours ago, MakeBuffaloGreatAgain said: Did this walk a few years in a row in Vegas in support of my Grandma... Good cause. Thoughts and prayers to everyone. Thanks! I was diagnosed in 1994, but I am still walking! We have been walking about 15 years now. Usually we do it in Rochester, but this year walked in Canandaigua, NY for a change. Total sponsors in 2018 contributed $1,265 to help those with MS and find a cure. Since about 2003, we have raised over $20,000. 2018 Sponsors: JÂy RÛßeÒ Tom Benson Anonymous Jane G Bill Low-Bear Boyst62 Mr info T. Huber M. VanLoan dKanga Grace B. Don DeCarlo Kevin B. Wynne Ryder & Gia R. Narad The Marrowbacks GG HJ Guiles J Walker If I missed anyone, please contact me! Donations accepted for another month to this cause at my MS Society page:http://main.nationalmssociety.org/goto/FamilyRockpile On Facebook:https://www.facebook.com/groups/349924721875823/?ref=bookmarks ...and of course donations can be made anytime to the National MS Society in your area. THANK YOU TO MY TBD SPONSORS! ? Edited May 21, 2018 by rockpile adds and edits Link to comment Share on other sites More sharing options...
rockpile Posted May 22, 2018 Author Share Posted May 22, 2018 Update: Counting personal and TEAM totals - there is a new total: Total sponsors in 2018 contributed $1,290 to help those with MS and find a cure. Since about 2003, we have raised over $20,000. THANK YOU TO MY TBD SPONSORS! ? 1 Link to comment Share on other sites More sharing options...
mead107 Posted May 29, 2018 Share Posted May 29, 2018 Great job ? Link to comment Share on other sites More sharing options...
rockpile Posted June 3, 2018 Author Share Posted June 3, 2018 Thanks to Jack, the team total is over $1.300 as of today. Nice birthday gift for me, too! You are officially off the "scoundrels" list! Link to comment Share on other sites More sharing options...
Recommended Posts