rockpile
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Posts posted by rockpile
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On 8/7/2019 at 2:42 PM, SDS said:
Do you have your tickets?
For #20? No, I am coming to the tailgate with no ticket to the game and play it by ear.
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I made probably 17 of the 20 tailgates. I know I was at the GAME for the first tailgate but with another group (you know who I mean, Scott). You tailgated with us the year before TBDAHOT #1.
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22 hours ago, JÂy RÛßeÒ said:
With 24 shirts currently ordered, we got to the threshold for the per-shirt cost being $11.49 (with previously mentioned upcharges based on size).
We're halfway to the next threshold - 48 shirts would get us to $9.99 per shirt. So spread the word to get more orders and save us all some cash!1 XL for pickup (maybe at Nick's?)
rockpile
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9 hours ago, SDS said:
I’m sure her only concern is staying at least 5.5” away....
Nah, she was standing next to her Mom. (at least that's what she said)
Whenever I am going to go on a fairly long walk, I use the walking stick for balance.
I made that stick at least ten years ago to hike in the mountains, and always used a walking stick when I backpacked, even forty years ago!
Unfortunately I have had to give up mountain hikes and backpacking, so I walk for a CURE!
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10 hours ago, Just Jack said:
Wait, did you actually walk, or just sit in that chair and poke people with your stick?
Come closer, I will show you!
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This was not even all of our crew. At least six others were not here yet.
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6 hours ago, Zaso Art Designs said:
What is your favorite summer vacation spot and what summer trip do you have planned this year?
Mine is Lake George, NY. It's just a wonderful place to be. Will be going again this June.
We stayed at Lake Luzerne once and had a great time. I also like Nick's Lake in Old Forge.
Favorite summer vacations were Hampton Beach, NH and Martha's Vineyard.
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There's the group photo! For those who do not know me, I am the old dude with the walking stick. My wife is the lovely lady in the orange t-shirt.
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Thanks to TBD / TSW and my other friends and family.
You sponsored me for a total of $1,555 this year.
It was HOT - 80 degrees here - but that sure beat the 40 degree days we have been having.
Photo album will be linked later for Jack.
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On 5/15/2019 at 4:15 PM, teef said:
i'm in.
are you related to doug by any chance?
I have no relatives named Doug.
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19 hours ago, Augie said:
Thanks! I’m in. Great cause!
Got it, Auggie! Thank you!
Keep those donations coming, even though I broke my goal. It ALL goes to the charity, I never see it.
It will hurt but I will be doing the 5K Walk, as my thanks for your generosity.
FOUR days to the walk, and you all have sponsored me for $1,230!
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Thanks for the support, Jack.
I am DELIGHTED that Jay broke $1,000 for St. Baldrick's. His efforts are to assist in fighting childhood leukemia.
His "Honored" kids are Sweet Sally Sunshine and Naaman J (my grandson). I shaved my head yesterday and have sponsored Jay.
With 14 days to go, team "Family Rocks" is up to $815, including your support. My individual goal of $1,000 is at $740.
TWO WEEKS TO GO!
Visit my page Family Rocks
My heartfelt thanks to all. If I missed you, lease Message me.
* is for Two Bills Drive sponsors
Jay Rubeo *
Bilby
dSmack
GraceB
Aussiew *
Tom H
zevo *
CecileDLibby
Idaho Slim
NoHuddleKelly12 *
Tina
Julie L
Just Jack *
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I have not. I may try it from the beginning since I can stream it.
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After midnight, we're gonna let it all hang out.
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We went up for the weekend to CT, and spent a lot of time with "Cheeky" at the Smilow Cancer Hospital in New Haven. He has become more responsive and interactive, but his condition still varies day to day. We spent as much time with him and his sister, "Deanie" to try to give my daughter and son-in-law a bit of a break.
When he first saw me in my Avengers t-shirt, he perked up and started pointing at the heroes, especially the Hulk. He is eating a little but still is wired and tubed up. We were able to have him placed in a wagon and we walked through the open air wellness garden.
There is little we can do from six hours away, but we do what we can.
After Dad took over at the hospital, we got to spend some time with my daughter, had our granddaughter do a sleepover at the hotel, took her to an egg hunt, and went to church on Palm Sunday.
We keep praying and are thankful he is out of intensive care. It was pretty scary a few weeks ago.
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Update: After a few weeks under sedation, "Cheeky" is slowly waking up. He is out of PICU and just starting to eat a little (apple sauce and yogurt - soft foods) Once he can keep food down and his liver is healthy again I will feel better. He is talking a little, but is still pretty "out of it".
It is a merry-go-round because it will take 6-8 weeks to make him strong again so they return to chemo to keep fighting the cancer. It is an odd thought that the goal is to make him well so they can poison him again. It is the only way to kill all the cancer!
Everyone is staying positive. Prayers are requested. You can follow his story on FB, by searching for "Team Naaman".
God Bless!
Rockpile
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Cheeky is still in PICU, but is no longer in critical condition. He cannot talk but he pantomimed he wanted his Captain America mask on.
I now there are ups and downs, but I will still celebrate the good news.
He will still have to stay in the hospital, perhaps for months.
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We are going up to see him, but if he's still in Pediatric ICU (PICU), we won't actually "see" him.
We are helping our daughter and son-in-law and spending time with Cheeky's big sister.
It is hard to help from six hours away!
Everyone is projecting those positive vibes, and his PARENTS ARE MY HEROES for focusing on only good things.
The power of prayer is underestimated.
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Sometimes the cure is worse than the disease. "Cheeky" has been under sedation for a couple weeks, fighting fighting ALL Leukemia with chemo cocktails, transfusions, and other various side effect maladies such as liver swelling, fluids filling his abdomen, kidneys barely working, and the "corona" virus. His doctors say "he has turned the corner", but of course that can change any time. We are thankful the downward swing is stopped for now.
He is slowly being brought out of sedation, so know he is also fighting prescription drug withdrawal
If you want, you can follow his story here: Cheeky's Battle or on FB at "Team Naaman".
Please say a prayer for my grandson and his family.
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On 3/30/2019 at 4:42 PM, Just Jack said:
Is it that time of year again, where I put you on ignore for three months?
Might as well. In fact, make it four.
I only saw this because it was on this thread (you were already being ignored).
To those who do not know us, this is the way me and jack-less "communicate". I am thinking of filing for divorce if it gets better.
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On 3/28/2019 at 7:37 AM, stuvian said:
I usually sign up for the e-mail list pre sale code
I just did this with Hamilton, but still could not get a seat where I wanted to sit that I could afford.
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3 hours ago, zevo said:
Sent a small donation...hope you guys have great weather for the walk!
Thanks! There is no such thing as a small donation unless your name is Jack.
We walk no matter what the weather is! The larger walk in the city of Rochester is on May 5, and to be honest it got so large it was no longer fun!
The walk in Canandaigua is smaller but it all goes to the same cause.
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We are walking in Canandaigua on May 19th, 2019 again this year and are asking for your help.
It seems impossible to believe that I was first diagnosed with relapsing remitting Multiple Sclerosis (R/R MS) 25 years ago!
Thanks to improved care and therapy, most of that time I was in remission.
Instead of giving myself daily shots or getting monthly IV infusions. I now just take one pill a day.
I have some limitations, and had to go on disability a couple years ago, but I have few complaints!
Total sponsors in 2018 contributed $1,365 to help those with MS and find a cure.
Since about 2003, we have raised over $20,000 for the National MS Society in Rochester and Canandaigua.
A substantial amount of the contributions were from Two Bills Drive
Please sponsor me if you can. At least go to the link provided and read my story!
Thank you! Rock
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On 2/15/2019 at 12:34 PM, JÂy RÛßeÒ said:
https://www.stbaldricks.org/participants/mypage/991167/2019
Sadly, beating childhood cancer isn't enough.
I am raising funds for childhood cancer research in memory of Sweet Sally Sunshine - Sally Kabel. Sally was the daughter NYCBBB co-founder Matt Kabel, and she was diagnosed with ALL Leukemia with a MLL Translocation of her (4;11) chromosomes when she was just 10 months old. Over the next 2 years she endured treatments meant for adults in an effort to "cure" her rare and aggressive cancer.
And those treatments worked. She beat it. The cancer was gone. But those adult treatments took a terrible toll on her young body. Her bones became brittle and she broke her leg 3 times while trying to learn to walk. Gastrointestinal complications forced installation of a feeding tube. Sleep apnea. Neuropathic pain. Developmental delays. Repeated bouts of pneumonia and other infections due to a weakened immune system. Worsening epileptic seizures. SO MANY hospitalizations.
For 5 years this brave little girl and her amazing family fought the cancer and then the post-treatment complications. This all ended at 2:01pm on September 19th, 2018 (a week after her 6th birthday) when she passed away after her tired and battered body was overwhelmed by yet another infection.Sally was my hero. I went to her funeral and celebration of life, and saw for myself just how many people she touched and inspired during her short lifetime. And she continues to inspire me every day.
And in July, the young son of another friend was also diagnosed with leukemia. The prayers begin again.
And so I do what I can - raise funds for Pediatric Cancer Research via St. Baldrick's. Something must be done to develop treatments more appropriate for pediatric patients, so that we can reduce the trauma they themselves cause. Only 4% of current funding is earmarked toward pediatric cancer research.
#ItsNotOK #MoreThanFour #SweetSallySunshine #BeLikeSally
Jay's friend might be your friend too. Nicole aka Babyrock is my daughter. Way back when she was still in college, she and another of my daughters and some of their friends were "ticket girls" for raffles at the TBDAHOT, if you have been with TBD long enough to remember!I met Matt Kabel at a tailgate in Buffalo (I believe) and saw him one year with Nicole at the NY City Bills Backers in Manhattan. Small world!
Sadly, Sally's fight against Infant Mixed Lineage (MLL) ALL Leukemia is finished but not her disease. Your support and prayers are still appreciated.
Naaman (Cheeky) is my grandson. He was diagnosed in July 2018 with PH-like ALL - Leukemia. He will turn two years old at the end of this month.
Cheeky, will be undergoing intense and aggressive treatment for at least another 2 1/2 to 3 years. He is on FACEBOOK as "Team Naaman".
Read Sweet Sally Sunshine's and Naaman's stories and the links Jay provided. Please help in any way that is best for you.
God Bless.
Rock
Cheeky got an early birthday surprise from ONE Bills Drive and Billy Buffalo.
Concert Pet Peeves
in Off the Wall Archives
Posted
One time a popular band, may have been Tom Petty, said: "OK, this is the part where we leave the stage and come back after you holler and clap for two minutes. We are now back." and then played "the encore".