Luvbills

Glad to hear all went well!

on ESPN this morning? She is paralyzed from a fall out of a hammock. He has to sell his house and cannot afford to send his child to USC...very sad story!

My dad ordered tickets over the phone yesterday and had a nice chat with a young girl. He asked her why they didn't do the paper forms and she told him that they were filled with errors. People marking the first preseason game thinking it was the home opener (they knew it was an error when they were ordering 10's of tickets to a preseason game). She also told him that some people got angry when the sections they wanted were gone so they gave them the next cheapest..etc...

I just got through online no problem...I do think they need to go back to letting us mail them in

Sending good thoughts his way!

I'll be there as a volunteer!

Sending prayers your way! What hospital are you at??

Congrats! Keep us posted!

Thought I'd post this here in case any of you live in the area~Kelly will be in Oak Forest Sunday for Krabbe benefit Jim Kelly has lived an incredible life. He ranks as one of the best quarterbacks in the history of the National Football League, guiding the Buffalo Bills to four Super Bowl appearances. In 2002, he was inducted into the Pro Football Hall of Fame in Canton, Ohio. Like so many of us, he took a lot of things for granted. Today, Kelly doesn't take anything for granted. Anything. "When you have a child with a deadly disease, it makes you think about a lot of things you've done in your life and just how blessed you are to have been able to live out your dreams," Kelly explains. When Kelly comes to Chicago's Gaelic Park, 6119 West 147th Street, in Oak Forest on Sunday, he'll be continuing his crusade to raise money to find a cure for Krabbe Disease. Here's a chance to meet an American sports hero. He'll be at Gaelic Park from 1 to 7 p.m., signing autographs from 1:30 to 2:30 p.m. Admission is $25 for adults and $15 for children 12 and under. The fee includes a dinner with Kelly, a silent auction, 50/50 raffle, music provided by "Good Rockin' Tonight" and a cash bar. A maximum of 500 tickets will be sold, so space is limited. Tickets can be purchased at Biker's Attic, 117 North 2nd Street, Peotone (708-258-9093) and Signature Awards, 3444 Ridge Road, Lansing (708-474-6077), or by calling the Liam Hammonds Memorial Foundation at 708-957-7273. You can also go online at www.liamsmemorialfoundation.org. Hunter's Hope is the foundation set up by Kelly and his wife, Jill, after their infant son Hunter was diagnosed with Krabbe Leukodystrophy, an inherited, fatal, nervous system disease. Hunter has beat the odds and is now 8 years old. To date, the foundation has awarded more than $4 million to leukodystrophy and other neurological disease related research. The foundation is Kelly's lifelong commitment to increasing public awareness of leukodystrophies as well as to increase the likelihood of early detection and treatment. Their ultimate goal is to raise money to fund research efforts to identify new treatments, therapies and a cure for Krabbe and other leukodystrophies. When Kelly comes to Gaelic Park in Oak Forest on Sunday to talk about his passion, "Tackling Krabbe Disease," he'll be continuing to educate people about the foundation he has established to raise money to find a cure. "Traveling across the country and meeting so many people has been extremely rewarding," Kelly said. On April 13 Kelly will be signing Hunter's Hope bears in Victor, N.Y. Three days later he'll be in Fort Myers, Fla. for the Drive Fore Hope Golf Classic. In May there's a Sister Cities golf tournament in New York, followed by a Motorcycle Fun Run on June 5. And the list goes on. He says he won't stop until a cure is found. Hunter's Hope Foundation has become Kelly's lifelong commitment. Kelly has never been one to duck a challenge. He has been from one end of this country to the other, trying to spread the word about Krabbe Disease. "Each state is different in what diseases they are required to test for in children before they're born," Kelly said. "Early detection is the key. We must continue to talk to politicians and lobby hard for what we believe is right. All states should be testing for this disease and many other diseases. It's a slow process, but we're getting there. "There is nothing like seeing your child walk, talk and smile. When I travel the country, I'm able to share my stories and listen to the parents who have been going through the same things that Jill and I have experienced. "I want these parents to know they have someone to talk to. Every person needs a shoulder to lean on. We're in this together. "We've gotten to know Scott and Terry Hammonds (of Country Club Hills) very well. They're wonderful people. They have such big hearts." Scott and Terry Hammonds have set up the Liam Hammonds Memorial Foundation for their son, who passed away from Krabbe Disease when he was 9½ months. The foundation offers financial aid to families who are dealing with this disease. On Sunday, you can meet Jim Kelly. You can meet Scott and Terry Hammonds. You can also meet Steve and Kelly Levon, whose daughter Anna is age 3 and suffering from Krabbe Disease. Steve is a graduate of Bloom High School. And there will be other families to talk to who have been affected by Krabbe. On the HuntersHope.org website, Jill Kelly talks about her son. "Hunter was born on his daddy's birthday, Valentines Day, Feb. 14, 1997. Hunter passed all of the newborn tests with flying colors, weighing in at 7 pounds, 14 ounces and measuring 21 inches. Our dream had come true. God had given us a beautiful, healthy son. We were ecstatic. "In Hunter's fourth month, his body was becoming stiffer, he was having trouble swallowing and he was experiencing mild seizures. Hunter's neurologist decided to test his blood for leukodystrophies. Our worst nightmare came true. "On June 23, 1997, Hunter was diagnosed with Krabbe disease. Now we are praying for a miracle." Jill Kelly talks about her son's journey, year by year. It's an emotional story, one that families throughout the world are experiencing. That's why it's important to stop by Gaelic Park on Sunday, meet Jim Kelly and listen to what he has to say. He's attacking this disease just like he did opposing defenses in the NFL.

I have a good friend who has had lupus for 25 years and she is doing great@ It took awhile for her to be diagnosed but once that happened, (she took steriods for a period of time) she found some great doctors and is teaching and living everyday!

Tomorrow is Hunter's EIGHTH birthday! Who would have thought he'd still be here fighting everyday..wonder where that strength comes from. Anyhow, the annual Hunter's day of Hope for Children has been moved from Chestnut Ridge Park (thanks Erie County) to the Buffalo Bills Fieldhouse from 5-8pm. IF any of you are in the area, feel free to come out and enjoy the festivities. The entire event is free and candles will be lit at 8pm.

hey Jay...I am in 137 row 29! Did you call the Ticket office already or did you do it by email??? I'd love to move over to 136 or 135

I know I read it in the Buffalo News a couple days ago...anyone know the dates and places??

All three local TV stations reported that the driver of the bus "is a person of interest". There are reports that the bus swirved into the truck. When I saw the picture on the news, it was so awful. The bus was cut in half! I'm surprised that more on the bus weren't killed.

And that car also had the Hunter's Hope logo (although very small) on it....I hope this one does also!

Not Ralph's plane. Jim has a very close friend who is a pilot and owns the plane. Hunter cannot fly on commercial planes either because of all his equipment and that's who flies them also.

Maybe since he got the private jet to take the family home.

BUMP....don't forget to watch!

Thanks! We were fortunate to have a special child (my first niece) in our lives for 2 1/2 years and this is our family's way of giving back!

BUMP....wish the AFC game was on earlier!!

Just want to tell all the Wallers that next week's show will hold a special place in my heart as well as anyone across this country who has ever heard of Jim Kelly (football Hall of Famer) or donated money to his foundation "Hunter's Hope." I have volunteered for them since Hunter was about a year old...he turns 8 on Valentine's Day (his daddy's birthday also). Hunter has a rare genetic disorder (Krabbe Leukodystrophy) that effects the mylein in his brain. Anyhow, this family in CA (Martinez to be exact) has a teenager who was diagnosed over a year ago. She also lost an infant cousin to the same disorder. Jhyrve has the adult/later onset. She had a stem cell (cord blood) transplant and is 100% engrafted. She could NOT go home for almost a year because the house is full of mold and allergens. A close friend nominated them for this show. So here's my plea! Please watch ABC's January 23, 2005 8PM (eastern time) TV Show...Extreme Home Make Over. One of our "Special Transplant Kids" is the feature. Bring lots of Kleenex. Hopefully anyone asking the questions, "WHY should I donate and support Hunter's Hope?" will get their questions answered. Hunter's Hope has literally paid the daily living expenses for this family for the past 9 months. Jim Kelly had a private plane take them from Duke Medical Center, in North Carolina, to their home in California. Remember if it were not for Jim Kelly's name and fame, there would be no help and certainly no awareness of Krabbe Disease. Jim has literally saved 26 lives in the past few years. This number of transplants also includes three from Europe. Yes, we have lost a small number of transplanted children. Not because of not trying, but because they were transplanted too late. Because of Jim's and Hunter's Hope/Universal Newborn Screening (our new green bracelet) effort, beginning in 2005, New York State will now test for 42 diseases at BIRTH..It was 11 in 2004..... The Test for Krabbe Leukodystrophy is now a reality..The State of Wisconsin and New York State will soon start testing for all Leukodystrophies. So please check out Jhryve's caringbridge site and the Hunter's Hope site. http://www2.caringbridge.org/ca/jhyrve/ www.huntershope.org If newborn screening had been available to her, she could have been transplanted shortly after birth. If it had been available to many of our Krabbe kids, they would be alive. Unfortunately, the children who are detected at birth had to lose a sibling first!

for an adult small jersey...any ideas??? She tried the web site for that store behind 7 Eleven and it won't work.....